Hi everyone hope you're all well and kicking! This is just a quick post to say I would really appreciate it if you checked out my friends post out about her cousin dealing with Alström syndrome at 17 years old, why he is an inspiration to her and everybody who knows him. I personally also have a different rare genetic disorder hence me feeling strongly about spreading the word for those less unheard of conditions, so please have a look and share it with everyone you know! Thank you x
http://www.makingadifference-loopyloo.blogspot.sk/